The
Art of Barfing: The beginning of a new
journey
My
plight to write a book began many years ago, but not in earnest. I made notes, but never kept a journal like
my friend, Judy, suggested. I never had
much time either for keeping good notes. But as fate would have it, in 2013,
something pulled me toward achieving my goal of writing that book. Let me explain.
I
became a member of the “Bad Girls” book club about 6 years ago, and I love
spending time with my girlfriends once a month, chatting and talking about
books… and “maybe” sipping a bit of wine.
One of the members, Julie, belongs to a local chapter of P.E.O.
(Philanthropic Educational Organization).
Each fall, the PEO holds their annual fundraising event called “Books
and Brunch”, which I enjoy attending.
This event features authors who give a brief talk about their book and answer
questions from the large, sold-out audience.
In
2013 it was no different, although, there was one Author by the name of Polly
Letofsky that especially peaked my interest.
Polly was the Author of a book called, “3MPH: The Adventure of One
Woman’s Walk Around the World” *. As she spoke, I listened, I observed and I
learned. She was a very gregarious
speaker! I loved her! She faced many obstacles in her journey to
achieve the goal of walking around the entire world, and she came out ok! What an achievement! She faced many challenges as she walked with
the goal of raising global awareness for breast cancer and fashioned an amazing
story about her achievement. Her story
was such an amazing feat (pun intended) and was featured in various media
outlets around the world. I knew I
had to chat with her when given the chance afterward.
I
approached Polly’s table where she was chatting and signing books for
others. I lined up and it was finally my
turn. I explained that I really enjoyed
her talk and greatly admired her for her determination to reach such a goal of
walking around the entire world! Then I admitted that I, too, was very interested in
writing a book about my life and my experience with my two boys. She enthusiastically raised her hands (the
way she does) and told me that her “regular job” was now to help guide
self-publishing Authors through the process of writing their own book. Wow, I thought. It was meant to be! We agreed to meet a few weeks later and talk
about what I needed to do and where to begin.
At
that meeting in a local Starbuck’s, Polly talked and I listened once
again. She explained what it meant to self-publish
a book and what the costs would be for each
step (it costs money to write a book?).
She also gave me estimates on timing and cost.
I told her what my ideas were and she
encouraged me to just write down everything I had ever thought about. I explained what fragile X was and, as with
most people, she had never heard of it.
I gave her a top level explanation, but planned to outline it further in
my words that she would eventually read.
This
was all so new to me, but it also seemed very exciting! Then, she said the one thing I will never
forget. She told me to, “Go home and
start barfing out your book. Don’t think
hard, don’t punctuate, don’t worry about spelling… just barf.”
As
I drove home from that first meeting, my mind was in a complete rush! Never in my life had I thought that it would
actually be possible to write a book! I
never knew what the steps were! I never
knew that it actually cost money to write a book! But each piece of information gave me hope
and fed me, while for 6 months, I barfed and barfed.
I
am sure there were times when Chris, my husband, wondered if I would ever come
back to him. I was so engrossed in
barfing that I had a hard time focusing on other things. Oh, of course, I did the day-to-day things
that were memorized, but anything that required some level of creativity was
gone. I was dug in. I knew I had to see
this book through.
Once
I had typed over 100,000 words, I paid the fee to hire Polly as my own
consultant, and the process began. The
first basic step was for Polly to help me generate an ISBN number, get my
business name set up for the publishing company and apply to the Library of Congress
for a number, all for a small fee. I
also decided to hire a final year Creative Writing student named Chris, to help
me organize the words into some kind of format that was cohesive. This was a long process. I started out with one flow and together, we
ended up completely changing it into another.
We finally decided that the draft was as far as we could take it.
Once
that was done Polly sliced my manuscript (yep, that’s what they call those
100,000 words!) into a format where three different editors could give me an
estimate on what it would cost to have my work professionally edited. Once everyone had given their input and
timing was estimated, we decided on one.
His name was James. We arranged
to meet, again, at the ever-popular Starbuck’s.
At that first meeting, James had already read or at least skimmed my
manuscript. He put forth his ideas and
interpretations of my work. He had never
heard of fragile X syndrome, so I explained what it was and how it affected my
sons. I gave him some idea about how I
wanted the reader to feel after reading the book. I also had a clear idea of how I wanted the
trajectory of the story to flow. We
decided to set out to do the hardest work of all…editing. This process would involve James, first,
taking the entire 100,000 words and cutting them down to useable, meaningful,
flowing stories. Then it was my
turn. I had to go through the grueling
process of cutting my own work. This was
very difficult for me, as well as being very personal. I never wanted to omit one single word or
story about my sons. I wanted to keep it
all. James reminded me that one of my
goals for the hard work was to make the story readable. That’s all I wanted. I didn’t want someone to start reading it,
find it difficult, put it down and never get back to it. In the depths of my soul I wanted a person to
start it and completely finish. So, I
made the sacrifices at the recommendation of James. Polly reassured me all the while that my
story would be wonderful and meaningful.
I wondered.
For
3 more months, the editing process went back and forth and back and forth, each
time cutting, revising, changing, tweaking and smoothing. It was harder than I ever imagined. Finally, we agreed that the manuscript was as
far as it could go.
I
needed more eyes to see it and to justify it for me, so I sent it to my friend,
Cara, who, from the standpoint of another Mom with a son with fragile X, could
share her own perspective in the process.
She was brilliant, and reassured me that the stories that I poured out
of my own heart were understandable and clear.
Then,
I needed the scientific view so I sent it to my friends and fragile X experts, Tracy
and Mouse. They combed through the
details and gave me sound advice on the information and facts based on their
memory as opposed to my own. This was
especially necessary since mine isn’t always so good.
Concurrently,
Polly had another expert named Nick design the cover of the book. Nick was genius in my opinion. He spoke to me only once and was able to come
up with an amazing design that represented my own thoughts. This is the one thing about the book that
both of my sons relate to the most even though they have no idea what the story
is. The font of the title alone is very
similar to our beloved Mister Rogers
Neighborhood, which is enough to grasp the attention of Jake and Joe.
We
still had steps to do. I was very
anxious at this point to share all of my hard work, but knowing my name would
be on the finished product forced me to be patient. Next, the entire manuscript had to go to a
Proofer. It was my choice, but having
one more set of professional eyes really seemed necessary. Polly recommended a woman by the name of
Jan. Jan was able to speed through the
work like it was second nature. She
submitted her recommended changes to me, and I made the questionable
changes.
The
final big step was to have a professional layout person get the manuscript
ready for print. Because my book
included photos and pictures of things, this was a bit trickier, but Andrea
made it look easy. She sent me 4
different suggestions on font, page layout, page numbering, paragraph and
chapter headings, etc. I chose one that
particularly stood out for me, and we went with it. At this point, I had to do a bit more work by
filling in my biography, the acknowledgements and other additional pieces of the
book aside from the story itself. I
wanted it to be as close to perfect as possible. I knew nothing in real life was perfect, but
I wanted to get close.
It
was finally finished. Polly explained
that the final steps would be to upload the final manuscript on
createspace.com, which would become available on Amazon within a week. She would set up my Author page as well as my
createspace account. My emotions were
very raw and my excitement was palpable.
Chris was particularly encouraged because my mind could finally let go
of the fine details of this book. He had
yet to read any part of it, but promised he would dive into the first copy.
About
10 days later I received my very first “proof” copy of the book in complete
form. It was a monumental moment. I shed a few tears knowing that my heart and
soul had gone into every single published word.
It had all come full circle. When the book came in the mail, as
expected, my son Joe saw the finished product with his photo on the cover and
immediately took possession. I had to
wait my turn to see my own work!
Then,
Chris took his turn. He isn’t an avid
reader, but managed to finish our
story in a mere 2 days. His emotions
were raw too. I could see in his face
that he was reliving all of the same facts that I did while I was writing
it. This, in itself, made it worth it
for me. He told me he was so proud of me
for writing it.
It
took a total of 9 months and several thousand dollars to do it, but I was very
proud to have finished what I set out to do.
I didn’t know if my determination would prevail, but I now had proof
that it could. I read the book
again. It felt really good in my hands. I had done this. I had shared our story in hopes of giving
back to all of those that gave to us.
Now,
all I can do it pray that it gives hope to all of those that I intended to give
it to. It’s there now for the
taking.
"Becoming Mrs. Rogers: Learning to Live the Fragile X Way" by Cindi Rogers is available on Amazon.
"Becoming Mrs. Rogers: Learning to Live the Fragile X Way" by Cindi Rogers is available on Amazon.